Meet Autism's False Prophets

Do you remember when kids used to go trick or treating and it was perfectly acceptable to receive popcorn balls and cookies from little old ladies? Then, starting in the 60's and 70's the rumors that there were poisons and razors in candy spread, and parents never looked at Halloween candy the same again. Obviously these rumors had to be true. Why would someone lie about something like that. The candy scare turned out to be an urban myth, loosely based on a couple of stories and it got out of hand. The point is that someone had to initiate the scare. The same is true for the mercury-causes-autism scare. I would now like to introduce to you the people that scared millions of parents into not vaccinating their children, and subjecting them to dangerous alternative therapies.

Andrew Wakefield: The Biggest Loser.
Meet Andrew Wakefield. In 1998 Wakefield held a press conference, claiming he had found the cause of autism. He believed the measles virus in the MMR shot was causing damage to the intestine. The virus was able to pass through the damaged intestine, out into the bloodstream, only to be carried to the brain, causing autism. His findings were published in prestigious medical journal (therefore making it all the more believable). He seemed to really care about the well being of children. However, his studies were flawed. He did them in his own lab, ignored contradictory data, and falsified his findings. He collected blood from children at his son's birthday party and subjected children to dangerous tests. He also had financial gain. He was receiving large amounts of money from personal injury lawyers to prove the link between vaccines and autism. He was also developing his own autism detection kits. Unfortunately, before this information became public, there was a ban on vaccinations, leading to a rise of measles in the UK, and instilling fear in parents everywhere that their choice to vaccinate their children was the wrong one.

Meet Mark and Dan Geier. They also receive money from personal injury lawyers to serve as expert witnesses in vaccine cases. They investigated vaccines by turning their basement into a lab. They are also chelation advocates, charging large sums of money for their own therapies. They also advocated for Lupron, a drug sometimes used to chemically castrate sex offenders, which they were financially invested in. To support their claims they referred to findings recorded in the Vaccine Adverse Events Reporting System (VAERS). This system was inaccurate and could be used to manipulate and support clinical findings to their liking. Because they have no background in autism, toxicology,pediatrics s or epidemiology their expert testimonies of subsequently been thrown out of court.
Famous people are smart and always know best. Robert F Kennedy Jr is from one of the most well known families in America. He is perfect to advocate for anti-vaccine laws. Problem is, he doesn't know what he is talking about. He is an environmentalist who also was a participant in a law firm that regularly sues drug companies. His articles on autism and the CDC have been inaccurate and misleading, but he's a Kennedy, so obviously his heart is in the right place.



This woman obviously knows more than doctors. Jenny McCarthy is such an idiot I don't want to talk much about her, except that her "google" degree has led her to cure her child's autism. McCarthy represents everything that is wrong with parents. Of course parents know their kids the best, but shouldn't be making medical decisions based on a 10 minute Internet search. Her kid may have autism, but now she can be a model and a best selling author. YEAH!

David Kirby is deserving of recognition. He is a journalist who wrote "Evidence of Harm" and anti-vaccine manifesto of sorts.

Then there are the scare mongering politicians that don't know what they are talking about that scare the country into believing something that just isn't true. The top offenders include John McCain (idiot), John Kerry, Joe Lieberman and Christopher Dodd.

Lets thank the media for giving these people a voice. A big thank you to Don Imus (always a pleasure), Oprah Winfrey and Larry King Live. Controversy makes for great ratings.


Most of these people had something to gain, money. Money is a huge motivation. Unfortunately, ignorance plays a huge part in this scare as well. I'd like to give these people the benefit of the doubt, and say that all our false prophets aren't hurting children out of greed, but out of a lack of knowledge. It's fun to pretend.

Autism's False Prophet's: Bad Science, Risky Medicine, and the Search for a Cure.

Lately, I've been growing more interested in autism. More specifically, the controversy that mercury containing preservatives (thimerosal) causes autism. This interests me for a couple of reasons. Firstly, because it has been a dangerous controversy. Secondly, because of the parallels it has to religion. There are people who believe very strongly that thimerosal causes autism, despite contradictory evidence. They are clinging onto a faith in something for comfort and answers. There is so much to be said on the subject. I've been reading this wonderful and very interesting book by Dr. Paul A. Offit called Autism's False Prophtes: Bad Science, Risky Medicine, and the Search for a Cure. I was drawn in by the opening quote by Tomas Szasz "When religion was strong and science weak, men mistook magic for medicine. Now, when science is trong and religion is weak, men mistake medicine for magic". The fact that Susan Jacoby also endorsed this book encouraged me that this is a good read. Now only is it about something that I feel strongly about, but it's full of skeptism, a quality any good atheist possesses. I'm not going to attempt to analyze and worhip this book in one blog post. So look for more to come, and seriously...read this book.

John McCain on Autism.

I will be honest. I haven't been following the presidential campaign all that closely, largely because I'm not overly impressed with any of the candidates. Because of this I haven't developed strong feelings one way or the other on any of the runners. However John McCain finally said something that caught my attention. He went on record saying that he believes mercury preservatives in childhood vaccines is causing autism. This is a very touchy subject in the SLP world, one that I can get pretty riled up about. One reason is that it is dangerous to make those claims. Parents end up not giving their children important shots, because of anecdotal claims. Children have been suspended from school, unable to attend class because they haven't received these required shots. While it's true that there have been tests done that show that autism rates tend to be higher in areas with high mercury content in the water, extensive studies have not been done. I could go on a boring scientific rant citing peer reviewed studies, but I won't. There are whole books on the subject of the evils of mercury. While digestive causes for autism cannot be completely ruled out it is unlikely. Autism can be observed in prevaccinated children. However the most damning evidence is that the mercury preservative HAS BEEN TAKEN OUT OF VACCINATIONS! It is no longer being used, and yet we are still reporting new cases of autism. I am a firm believer the the genetics argument, but etiology isn't my area of concern. There is a lot of need for parents to place blame on their child's disorder. Whether they see it as a testament to their own bad genes or they just don't know enough, blaming isn't going to make your child communicate any better. Let's lay off the mercury people. It is so 1990's.

Is there an Austism Epedemic?

We've seen the celebrity fund raisers, car ribbons and bracelets. Autism has become a common household word, where, maybe twenty years ago, the diagnosis of Autism was rare. Autism rates have been steadily rising since the mid nineties. Parents and professionals alike call it an epidemic. Roy Richard Grinker author of "Unstrange Minds" disagrees with the term "epidemic". The word itself implies that it is a contagious disease. Autism is obviously not contagious and appears to be genetic, although that has yet to be determined. It also suggests that there are more people today with autism than there were in the past. Grinker, as well as myself disagree with this. Using the history of psychiatry and modern diagnostic techniques, some plausible reasons for the rise in autism cases can be seen.
Awareness plays a huge role in diagnosis. As I said earlier, autism awareness has made its way into pop culture, and medical settings. Mainstream teachers, psychologists, clinicians and parents are educating themselves thanks to the growing resources on the internet and peer reviewed journals. Because of this, the behaviors of an autistic individual are more recognized leading to an earlier and more appropriate diagnosis. A child with Aspergers ( a high functioning form of autism) would have been seen as socially awkward years ago when the diagnosis didn't exist. Many historical figures have been believed to have autism, from Einstein, to many of the great poets and writers. On the other end, children with low functioning autism were noticed but had a completely different diagnosis. Many times it was mental retardation or childhood schizophrenia. They were put into institutions by well meaning psychologists that no idea that there was such a thing as autism. Reading old mental health journals, reports and case studies, there are many individuals that displayed obviously autistic behaviors. They just held a different diagnosis. Like Newton (ironically another hypothesized autistic) "discovering" gravity when it has always been there, so to with autism. There were always people with autism, they just went under a different name.
There are economical reasons for autism cases as well, and this is not necessarily a bad thing. In some states a child can only receive insured care with a diagnosis of autism. A clinician may see a child that needs help, for example a child have a developmental delay, or even mental retardation, but insurance may not cover specialists, such as SLPs. for those diagnosis. So they diagnosis them with autism instead. Sometimes it is so the child can receive more appropriate therapy. Most clinicians have the sense to diagnose to the benefit of the patient, even if it is not by the book.
In this country at least there is less stigma attached to autism. Up until almost the seventies the blame was placed on the so called refrigerator mothers. Mothers were to blame for everything, from their genetics, to their work choices, to their motherly care. They were hesitant to have their child receive a diagnosis of autism, because it reflected poorly on them. Fortunately modern research has shown that this is not the case and autism isn't something to be hidden away from the world and the diagnosis is welcome. In other countries this isn't the case. I won't talk in length about it but some other countries have a very interesting and unfortunately negative view on autism, such as South Africa, India, Korea and France. This countries, even today, have been known to put autistic individuals in cages or to exorcise them. I don't want to give the wrong impression of these countries, or make them seem backwards. The parents (usually mothers, but not always) are just as caring there as they are here.
Finally I can talk about my experience ( how little there has been so far). Autism has almost become the preferred diagnosis. It seems to give hope, where there is no hope with mental retardation. There is less impairment. They can be "cured". It is almost fashionable. I have had parents convinced their child has autism, and want their child to be put through every test imaginable, from MRI's to standardized tests. When anything but an autism diagnoses comes back, the SLP is the incompetent one. Parents are misled by youtube videos, and anecdotes on the web. They mean well, they love their children, but this insistence on having a certain label is certainly something to think about. Of course this is a completely subjective field. Every clinician can look at an individual and come up with something different. The most important thing, no matter what the numbers, or parental pressure, is that the patient gets the most beneficial care possible.